"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Friday, May 8, 2009


Docs are getting ready to round here in a minute. I left last night around 6:30 and Greg stayed the night with him. I have gotten smart enough to realize when I've reached my limit so in order to provide the best care for Connie, I had to take a break. Plus, my little MookieRoo is missing her mommy. She and I went to Wendy's for dinner and a frosty and then home to let Belle out and go to bed. I got a shower in my own shower and even got to dry my hair this time! We got up bright and early, stopped for a donut on the way in and got here by time for morning rounds at 6:30. She and Greg are snuggling on the parent couch thingy in the room and Connie is snoozing away. He had a great night. His new little roommate is very quiet. Nary a peep out of him. He was wired again so he didn't fall asleep until 11:15. He did get a spongebath and clean sheets and pajamas so that was nice. The big news about the overnight is that his respiratory rate has been down where it was even on the Milrinone, meaning he's not showing signs of slipping back into the severe cardiomyopathy (failure) like he did last time we stopped milrinone. Dr. Checchia told me last night that they didn't anticipate him having difficulty with it this time because his rhythms are normal now, where they weren't the last time he was taken off. The "shelf life" of that drug is like 3-6 hours they say, so if we were going to see him decline and the failure worsen, we would have seen it by now.

We'll update again after we get the plan for the day.


H. James said...

Catching up, again. I have been sans internet access for a bit for boring reasons beyond my control, but wanted to check in on Connie. Everything sounds much better. At least NOW the shared room might mean you are closer to going home. I hope everything goes well & you are all home soon.
I'm off to send my laptop back to HP for some "repairs", so I'll check in when I can.

L. Pappalardo said...

Just keeps sounding better and better!! Any idea of when you will be sprung?

Anonymous said...

I received this forward today and thought of you. I am keeping up with Conway's progress and know that God gave him to you for a reason. I hope your mother's day is spent at home with your wonderful kids!
Katie Kilker
A Newborn's Conversation with God

A baby asked God, "They tell me you are sending me to earth tomorrow, but how am I going to live there being so small and helpless?"

God said, "Your angel will be waiting for you and will take care of you."

The child further inquired, "But tell me, here in heaven I don't have to do anything but sing and smile to be happy."

God said, "Your angel will sing for you and will also smile for you.
And you will feel your angel's love and be very happy."

Again the small child asked, "And how am I going to be able to understand when people talk to me if I don't know the language?"

God said, "Your angel will tell you the most beautiful and sweet words you will ever hear, and with much patience and care, your angel will teach you how to speak."

"And what am I going to do when I want to talk to you?"

God said, "Your angel will place your hands together and will teach you how to pray."

"Who will protect me?"

God said, "Your angel will defend you even if it means risking its life."

"But I will always be sad because I will not see you anymore."

God said, "Your angel will always talk to you about Me and will teach you the way to come back to Me, even though I will always be next to you."

At that moment there was much peace in Heaven, but voices from Earth could be heard and the child hurriedly asked, "God, if I am to leave now, please tell me my angel's name."

God said, You will simply call her, "Mom."