"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Saturday, June 20, 2009

Just Another Day

Enjoying some time with no leads/monitors right after bath

Happy Father's Day Daddy!

I can examine myself, thank you very much!

"Can I listen to you?"

Bath Time

of no surprises. Daddy played with Connie this afternoon while I took the girls out for a bit. We swam and shopped for Father's Day goodies. When we got back, we ordered IMO's and ate altogether as a family for the first time in what seems like forever. We went out to the parent lounge on this floor. Of course, Connie only ate saltines, but it was nice nonetheless. We gave the leftovers (and there was a lot b/c Greg always orders too much) to the nurses and docs. They were VERY appreciative and were seen sneaking pieces the rest of the evening. He had a special visit today from his physical therapist, Ms. Deb and her daughter, Allison. Allison also babysits the kids. Allison and her friends have started their own charity called Friends of Hope (I think that's the name) and they used their own money to buy toys for sick kids. Connie and the girls were the first ever recipients of their generosity! Thanks ladies!! What an example of Christian service. I hope our girls are just as thoughtful and giving someday. After some more running in the halls, Connie got a bath and books and prayers and bed. He should only get messed with at 12am and 4am so that is good.

Party Animal

Connie was a wild man last night and even found himself in trouble a couple of times. He came very close to falling out of the bed twice, even with all four rails up! I think it was past 11:00 before he finally went to sleep. He woke up about two times and it is now seven and he's snoozing soundly. It's so nice to have an older roommate. The teenage boy will be attending Vianney in the fall so he and Greg chatted a bit about that last night. They went down on the coumadin to 1mg b/c his INR level went up again (he seems pretty sensitive to that stuff) and his thyroid was slightly elevated. Don't know if that's already an effect of the amio or if that is his baseline. I'll ask today if I see somebody.

Have a great day. I think the plan is for Greg to play with ConBon today while I take the girls swimming for a bit and out to look for Father's Day goodies. It's amazing how holidays and real life can slip by you when you are in here!

Friday, June 19, 2009

Mid Day (Friday)

Eating Doritos-yum!

Cheesy lips

Watching "Melmo" (Elmo) while he eats doritos

Watching TV and playing with Daddy's iPod--he's got it so rough!

Doing his favorite thing in the hospital, pushing buttons on the bed!

We are still here (surprise! not!). Connie's roommate got sent home just in time for him to take an afternoon nap. Poor thing was inconsolable all morning. Her mommy tried everything, but to no avail. To make matters worse, he wasn't allowed to venture outside of the room b/c the portable telemetry devices weren't working properly! He didn't seem too bothered by her crying, but was definitely at the peak of boredom. We asked the nurse to have Child Life bring us something new to do and we got infant toys that you press a button and a thing pops up. I was hoping more like a truck he could push around, but oh well. He did name the animals that popped up and even tried to feed the frog some of his raisins at lunch. That was pretty cute. He didn't eat much breakfast or lunch, but he did have one good diaper and drank 3/4 of a sippy cup full of diet soda (I'm desparate at this point!). His IV was not flushing so we got that pulled too. Now he's just on the monitor. They are watching his intake closely though so if he doesn't start drinking a bit more, he may get a new IV tomorrow so they can deliver some fluids. We kept harping about getting out for a walk so after lunch we finally got to tour around on 7. I'd say the highlight of his day has been pushing the automatic door button on the wall. He goes right up to it and bounces around like he can't contain his excitement. It's hilarious. We took some hot wheels out in the hall and pushed them back and forth for a bit and then he got a 12 lead EKG. They said they'll be doing it daily while he's on an amiodarone load but this is the first day for it. They drew blood late this morning for his INR level and to get a baseline on his thyroid. This is so they will have something to compare it to in a couple of months when they check it again to monitor whether or not the amio is negatively impacting it.

I look for him to sleep until 4 (cross your fingers!) and then maybe we'll walk around some more before dinner. Greg is bringing the girls up around 6:30 so that will be fun for him.

GOOD Morning!

Connie and his roommate slept all night!! The nurse came in one time to do something with the little girl and she fussed for a bit but her mom got her calmed back down quickly. His monitors were a little annoying, even though he wasn't moving. The nurse came in a couple of times to do stuff with those and he woke up once and got a little panicky. I talked to him and after she left crawled in bed with him till he fell back asleep--which he did!! He got up at 7 and is now eating some dry Honey Nut Cheerios and, you guessed it, Saltines, while he waits for his "breakfast" to come up to the room. Looking forward to a great day. These days where there's not a lot of change and no procedures or anything seem to drag on forever.

Thursday, June 18, 2009

Nitey Nite

He's asleep and I'm following soon. He did get a roommate around 6:00. I think she may be leaving tomorrow though. He's been a bundle of energy all evening and playing around. He took another big walk with Daddy around the floor while I took Mookie to Applebee's down the street. It was nice to get outside, even if it was muggy and hot! No real health report. They don't do "formal" rounds on this side and his plan is pretty much just to stay and play until Monday anyway so they just discuss him as a group at shift changes or whatever. After Applebee's Mary Kathleen and I went up to the garden on the roof of the 8th floor. It's a shame that his portable telemetry device won't work from up there. There's a huge playroom and all kinds of stuff to do on the 8th floor. He seems tired of the toys and books from home. Maybe I'll see if Child Life Services will let him borrow some stuff from up there tomorrow.

Rough Move

Connie finally fell asleep around lunch time and was awakened an hour or so later to be moved. He was not a happy camper. We tried everything we could think of and even a walk in the alligator wagon didn't calm him down. His late lunch came and he ate 1/2 of a dinner roll and some milk and juice and doritos (couldn't get anything else into him) and was much happier. He got on a portable monitor and was able to go around on the floor in our stroller and also walking (more like running!). He showed off and played pushing the automatic door buttons.

When we got back, he'd been moved again. All our stuff was down the hall and in a room where he is now the only patient!! Yay. That means Mommy has a window seat and he even has a little area to play and move around. Hopefully we'll get to keep this set up until Monday when we should be getting out of here.

They are talking like not interrogating the pacer until right before discharge. This baffles me and I still don't comprehend how his rate can be fixed at 100 when he's up and mad and screaming/crying. To me that means he's in flutter and mode switched, but I'm no doctor.

So, despite our somewhat stressful couple of hours, things are looking great. Just the fact that he had the energy to walk around for an hour is great! I wish they had a playroom or child life on this floor. He's confined to the 7th floor but there's not much to do other than walk the halls. This is tricky with him b/c he likes to go near doors he's not supposed to and he likes to bang on the metal cabinets in the halls near the doors of patients who are on contact precautions! I have to try to corral him in certain directions while holding his telemetry monitor!! It's kind of challenging to say the least. It's better than sitting in bed though, that's for sure.

Greg and MK are coming up soon and then tomorrow Cece will get to visit. I'm sure that will be a nice distraction for him.

Still Awake and Today's Plan

He never did drift back off. He's going to be one sleepy or crabby boy today!

Docs just finished rounding here and they are confident that his intervals looked good overnight and that the 100 was just being paced and not flutter. I really want them to interrogate it again, which is very simple to do. They said they can look at it again before he's moved to the floor. The milrinone is getting turned off for the second time soon so as soon as that's done, we wait six hours to see how he is and then if he's fine and there's space out there, we move to the floor. His INR level this morning is 2.64 which is right where we want it, somewhere in the 2-3 range. His coumadin and dig were both cut in half last night for his evening dose and are going to stay that way for now. Apparently there is some issue with drug interactions at the doses he was at previously.

Not much sleep (Weds nite/Thurs morn)

Connie did go back to sleep for about 1.5-2 hours last night but then has been awake and squirmy ever since. Altogether he's had about 4 hours I'm guessing. He even had some 4am crackers and juice (no dinner last night) and wanted more but I want him to eat something at breakfast so I told him to lay back down. He's being very good and cooperative other than pulling on his little IV house (cover) and taking his sat monitor off a few times. He's been wetting diapers and the doctor came in around 5am and assessed him and says he looks good and his liver is barely noticeable. The plan was for him to go to the floor around 10 or so if he tolerated coming off the milrinone that they turned off at 4am (have to watch him for 6 hours before sending him out) but after the night he's had with the questionable heart rates, they turned it back on at 5:15 until such time as they interrogate the pacemaker to find out what was the cause of those times where he's stuck at 100 bpm.

I'm trying to get him to go back to sleep now but it's almost a lost cause since they'll be up to take blood sometime around 6am.


Connie has been squirmy the last couple of hours and I finally got up to see and his monitored HR is stuck at 100 again. It could just be that his heart is healing and he naturally is wanting to drop down some but since his low rate is set at 100 it is just pacing him, OR, he is in flutter again. The nurses and docs noticed it before me and have been analyzing all the p waves and qrs waves throughout, insisting that this looks different than his waves looked when they "knew" he was in flutter when he came in. My only concern, and reason not to take this answer as gospel is, that the only way the flutter has been detected reliably thus far is by interrogating the pacemaker. It hasn't shown up on phone transmissions, it hasn't shown up on monitors and it hasn't shown up on an EKG even. So, before we move out to any floor I've requested that they interrogate him again in the morning or whenever to see what these periods of 100 look like in the devices history. We shall see. I think it's funny that he was squirmy and awake, even before she came in to do vitals. It makes me wonder if he feels funny and with a racing heart he can't sleep.

Now that I got up and talked to them and went to the bathroom, he's taken over the center of the bed! I guess I'm resting in the chair the remainder of the night. . .

Wednesday, June 17, 2009

Evening Rounds and Report (Weds)

Docs came around this evening. Connie had 16 saltine crackers (even one doc said, "In a row?"), 1/2 choc. chip cookie and 8 oz. of OJ for lunch. He ate zero dinner though. I even got him soup, grilled cheese, french fries, grapes and chocolate milk and he'd have none of it. I'm not going to stress. Maybe he's just not ready.

We did have one alarming episode this afternoon. He was napping and his rate was at 100. It stayed there, but we thought it was that he was too low on his onw so he was being paced. Well, moments later he woke up and cried and moved around and got active and it stayed stuck at 100. I motioned to the nurse who came in and said she had been watching it too and was concerned that the flutter was back. She and two cardiologists looked at it on the "big board" and thought that it looked like he was in normal sinus rhythm except for the fact that it wasn't changing with increased activity. That was weird, but it only lasted for 10 minutes or so. He's been 104-114 ever since. The plan is to keep an eye on that overnight and if nothing else happens, stop the milrinone tomorrow and move him to the floor for the rest of our stay. That's the part where we have a tiny room and will have to share it.


The Medtronic Mad Scientists (engineers and field reps) have been working feverishly with the MD's today to understand what is going on, what happened, and what needs to be done regarding the pacemaker. At about 3pm, the pacemaker nurse and the field rep came in to adjust settings. I still am completely lost when it comes to understanding this portion of Connie's heart disease. Now the flutter will show up on a CareLink monitor transmission if the docs look for an atrial ECGM or EGM or something like that. It won't be missed again. His lower rate is now set at 100 and might come down before we leave the hospital. They tried him as low as 60 and his own rate never did kick on to override that. That means if his pacer malfunctioned or something and he wasn't being paced he would feel pretty miserable. As soon as she turned it down he started fussing. The other thing we should look for is the artery in his neck. If it is going fast or is very noticeable, we should send a transmission. The heartbreaking news is that he's been in flutter on and off for over 15 days. On the atrial arrhythmia report by month, there were a few brief episodes in April and then May is just covered in abnormality. I just wish he could tell us his heart feels funny. Poor baby. Hopefully the amio will do it's job and we can prevent future episodes. Dr. VanHare reiterated today the need for a catheter ablation, but that it would not be recommended until he is much bigger (like 7 or 8 years old). So, for now we hope that the amio is well tolerated and works! We'll leave it up to God since it's even pretty tricky for the smart people at Medtronic to nail down :)

Prayers are Working!

Right after I signed the consent (after hearing about the possibility of perforating the esophogus and emergency surgery, stroke, etc.) for both procedures, they hooked up the interrogation device for the pacemaker and Dr. VanHare discovered that Conway is back in NORMAL SINUS RHYTHM!! On his own (well, more likely with the help of God), he has a normal atrial rate. Therefore, there is no need to proceed with the TEE or cardioversion. I told them I didn't believe them. They then got on with the investigation of why that mode switch isn't switching. They've paged Medtronic to figure this out because the initial suspicion is now thought to be uninvolved. While they try to figure out this pacemaker and tweak the settings, they are getting to the business of giving him his 'loading dose' of amiodarone and getting the Heart Failure under control again. Thank you God for listening to all of Connie's prayer warriors and sparing him these procedures.

That was the good news. Now for the not so good. He will be here "at least five days" according to the docs because they think he could go right back into flutter at anytime, especially since the amiodarone doesn't really become effective for 7-10 days after it's begun. He will likely be on Coumadin much longer now too than the three weeks we were originally planning on because they want to keep him on it until they feel confident that the amio will control the flutter. That way, if he goes into flutter again and is already at a therapeutic level then he can be cardioverted right away and it would make our life much easier than waiting for his INR to get up and risking the clot issue. It would be the safer way to go, speaking of flutter. Of course falling and bleeding wise it is not so safe, but you have to weigh the pros and cons, I guess. I'm pretty bummed about being here for five days at least. I know I feel more comfortable with him being monitored closely, I just think about poor MK and everything else that one deals with with a stay that's longer than a day or two. Okay, enough of my pity pot! Thank God our little boy is avoiding yucky drugs and risky procedures. For all we know, there was a little clot hidden somewhere in there that wouldn't be visible on TEE due to the baffles and he'd have had a stroke or something major afterward.

God is good, all the time. All the time, God is good (even when I start questioning after six needle sticks in a 4 hour period!).

Mid Morning Update (Weds)

I was applying for a job online (while Connie sleeps) when the nurse came in and said Dr. Bromberg's nurse, Colleen, was on the phone for me. As I was recapping the events of the last 24 hours, who walks in the door but Dr. Bromberg himself! He didn't even know Connie was here yet, but comes here every Weds. AM for cardiology conferences and saw his name on the board. He came in and examined him and then set the plan for the day. He is not getting his morning meds (which is good since he's sleeping and I didn't want to have to wake him-AGAIN) b/c they are going to start him on IV Amiodarone today and proceed with the TEE and Cardioversion sometime later this morning (Who knows when, really. After all, we are in the hospital!). Before they cardiovert him, Dr. VanHare is going to do some messing with the pacemaker settings to try to get it to tell us he's in flutter while he still is. The settings need some careful tweaking and it's kind of a numbers game now. Since he's on IV heart meds, he won't be going home today after the procedure, but there is hope, according to Dr. Bromberg, that he could go late tomorrow afternoon. We're not making any definite plans as of yet, but it's nice to know this isn't necessarily a week-long sentence!

Thanks for your prayers. Connie is getting some well-deserved rest now. Come to think of it, he'll probably sleep most of the day since he'll be sedated for the procedures. I guess he'll be a night owl tonight!! We've had a wonderful experience here and the nurses are really looking out for his best interest. One nurse who isn't even assigned to him, but to the patient next door, saw a sharps collector worker coming in to change out the bin and she stopped him to tell him to come back later, that this baby had been up all night and didn't need rattling around in his room right now. I was so pleased to see that!

After the Rounds Wednesday AM Update

Conway is sleeping now and has been since about 7am! Finally a whole hour uninterrupted. The nurses up here tried to get blood and poked him 2X unsuccessfully around 4:15am and again at 5am. At 6:45 the phlebotamist came up and it took her two attempts as well. Poor kid got stuck six times for that elusive INR level. He had great veins, they just weren't drawing. It was so heartbreaking to watch him cry so hard. He's definitely not dehydrated b/c he had real tears and lots of them. He's so freaked out just by the presence of any personnel in the room, even those that don't give him "owies". He monitors everyone's movement in the hallway too to make sure they don't come in his room. He's so untrusting right now. Of course he doesn't believe me when I tell him it will be okay either.

Dr. VanHare wasn't present during rounds so nothing was really decided. They did start him around 5ish on some IV fluids and IV milrinone to help the heart. If they do go ahead, he'll have to be NPO (no food or drink) so right now they have that in place. Hopefully they decide so that when he wakes up he can eat if he's not getting it. Not that he'll eat much, but with the milrinone, he might feel more up to it. He did have a wet diaper upon admission to the CICU last night. After no wet diaper for over 24 hours, he peed 32cc's! That's not much, but better than nothing, I guess.

Thanks for your continued prayers.



Now that I'm on the laptop and it's easier to type, I'll give some more details about tonight. We went to mass and the last few minutes of it he was not right. He had this look on his face like he knew something was wrong. He got very quiet and still and laid his head down. We left and went home and as soon as we got in the door he threw up. I called Dr. Bromberg's exchange (it was now about 8:10 or so) and Dr. Bruns was on call so he called back a few minutes later and told us to take him down to Children's since that's where they were planning to TEE and Cardiovert him anyway later in the week. We got here to the ER and I heard them telling people that the wait was over 3 hours to see a doctor! I very politely told them that he was due to have a procedure and could they direct me to a place to wait that was the least likely for him to catch something (coughing, sneezing, etc everywhere!). They gave us a private booth so to speak and it wasn't too long before we got seen.

He vomited again after his chest x-ray, which showed his heart is enlarged (it usually is some anyway) but no fluid so that was good. The EKG didn't even pick up on the flutter, just like St.John's didn't catch it in the ER either. Cardiology got involved and came in for an echo. The fellow thought his function looked pretty good. Then Dr. Johnson, another cardiologist came in and examined him and took some history and then went to look at the echo. When he came back, he said that he doesn't think that dehydration is our main issue here (no wet diapers since yesterday afternoon) and that his heart function is a little down from the echo that was done the morning he left the ICU here back in early May and definitely down from the echo done before his cath here in April '08. They are going to get him moved up to the CICU and monitor him tonight, giving him a slight amount of IV fluids (they don't want to give him much b/c with decreased heart function, he'll retain it and cause more work for the heart) and then talk to Dr. VanHare and Dr. Bromberg in the morning to come up with a plan.

About the labs. . .They gave him a shot like lidocaine in his hand so that he wouldn't feel the IV. Apparently it can cause you to "lose the vein" and that's what happened. The nurse fished around for ages looking and never could get anything. Of course he had just fallen asleep when she came in to do it. Then she went and got another nurse and this one tried the other hand. I said for her to skip the numbing and just get it over with. By this time, he'd been screaming for about 30 minutes. He was sweating and couldn't hardly catch his breath. As I type this now, he's STILL doing that whimper in his sleep thing. She got in right away, but not in the right spot, so it came very slowly. Plus, with him screaming, it made it even worse. The line was good and was able to flush so we kept it for an IV, but they weren't able to get all his labs done. I'm praying they wait until AM to try again. They did get a lactate level on him and it is elevated, another sign of distress to the heart.


I just spent the last HOUR listening to my baby scream while multiple people attempted to draw labs. Needless to say they were unsuccessful and are going to come back again. Please pray his veins cooperate (if you are actually awake and reading this at 2:30am).

Tuesday, June 16, 2009

Posting from Children's ER

Connie three up after mass. Dr. Bruns said to go in. X-ray done, EKG done, waiting on echo. Cardiology fellow on call will do it himself. Will post after we're settled (assuming they keep him-he threw up again after Xray).

Just Updating

Connie is doing pretty well today at home. He's been a tad clingy, but not anything like before. He's been walking around the house causing trouble, turning off computers and printers, aggravating Mary Kathleen and playing with toys some. He's hardly laid down at all! I guess pacing him (the lower chambers) at 100 (what Dr. Bromberg did yesterday) definitely helps him feel better and more normal. He didn't eat anything at breakfast, but did have a whole scrambled egg an hour later and then some cheez-its and yogurt for lunch (he passed on the applesauce, blueberries and hot dog). His diaper from overnight was bone dry, which surprised and worried me. He had a whole cup of water last night during the parish mission and then afterward he drank almost a whole cup of fruit punch.

I've put in a call to Dr. Bromberg to clarify some questions we have about the pacemaker and we've requested that his records from these last two flutter episodes be sent to the EP in Michigan, Dr. MacDonald Dick. The only reason for this is that we wonder if he might benefit from a new pacemaker since this one appears to be "not working properly". If that were the case, we would consider going back to Michigan for the surgery. I've also requested that Dr. VanHare, the EP at Children's who will be doing the procedure on Thursday, call me at his earliest convenience so that we can discuss these questions, as well as the long term plan for Conway regarding his rhythm issues.

Walgreens can't make the Amiodarone until Friday so St. John's pharmacy is now the place to go. I'm waiting to hear back from the compounding specialist there.

Other than that, not a whole lot has changed. We are just thankful that he is eating some (and keeping it down) and that he seems more comfortable today. Thank you for praying--don't stop!

Pics from the weekend. . .you can see that he was just not his usual smiley self.

Monday, June 15, 2009

Recap of the day and further explanation

So today Connie was not himself. He fussed if I left the room, fussed if I didn't hold him and fussed if he had to be upright for any length of time. He hardly touched his food and says he's all done after about one minute of an sort of activity other than laying on the floor. He started this some on Saturday, but we thought he was just tired. Yesterday was a little better but today was the worst. I thought to myself that I don't want to let his heart get as bad as last month so I called. The worst they could tell me was I was overreacting or something. Nurse Kelley came on the phone and said to send in a pacemaker transmission. This was about 4pm. I had to go to my parent's house to do so because we don't have a land line here. I called the office as soon as the report was complete and Kelley was already pulling it up. She sounded a little like she was in thought about it and then asked if she could have the Dr. call me back after he'd taken a look. She said nothing looked "horrendous" but she just wasn't sure. She called back five minutes later and said, "Come on in." I knew that wasn't good. MK, Connie and I sped down hwy. 70/270 to St. John's. We went straight in and got "the big room" (the one that has space for the cart that has the pacemaker interrogator machine. As soon as she hooked him up they could tell he was in atrial flutter again. Dr. Bromberg tried to convert him right there with the machine but was unsuccessful. He got on the phone with Dr. VanHare at Children's to set up a transesophogeal echo and cardioversion. He said he didn't think Connie was needing to have it done right away but also knew he wouldn't tolerate two weeks of anti-coagulation first because last time proved to us that his heart function deteriorates to much for that. Dr. VanHare's primary concern is the anti-coagulation levels post-cardioversion so his plan would be to admit Connie after the procedure for how ever many days it takes for his INR levels to get to a therapeutic level. He would even put him on Heparin in the hospital. Dr. Bromberg, with our quality of life in mind, suggested that as long as he's doing as well as he's doing now (sleeping, eating without throwing up, etc.), our plan should be to start him on coumadin now so that for the next few days he can get his levels up and THEN go through with the cardioversion on an outpatient basis. We like that plan better too! So, for now, the plan is to give 3mg of coumadin tonight and tomorrow night and then to give 2mg on Wednesday night. Then Thursday we'll take him in and they'll proceed with the TEE and the cardioversion (shock to get his heart back into normal sinus rhythm). This is the same thing he had a month and a half ago, but this time, we think we caught it earlier. For a little background, we've been periodically checking Connie's heart rate for that magic number of 100. We've been told that if he were to go into flutter again that his pacer would kick in the mode switch and automatically pace him at 100 so that would be our red flag. Well, we've been checking him and even today we are not getting 100. Dr. Bromberg said that the mode switch "isn't working". We don't yet have an answer for this. We are quite frustrated. Kelley said that the report shows that it "switched" some 19 times and then all it says now is "suspended". Dr. Bromberg said that looking at the report from the pacer, it shows several days (like more than 4) of high rates. Poor baby. No wonder he is asking to be held and doesn't want to play for more than a few minutes.

The other bummer, and it's a big one, is that he's now going to have to start amiodarone, a strong anti-arrhythmia drug. I'm taking Dr. Bromberg's advice and not looking it up to read all the horror stories about it. I did ask what we should watch for and he said we wouldn't see anything if something were wrong. The main side effects include issues with the thyroid, liver function, lung function and hematologic function (blood counts). He'll have to do a number of labs on Connie to monitor these areas and if need be, prescribe more meds to deal with those side effects. He'll also be hypersensitive to the sun, which shouldn't be a big deal for us b/c he has a rash guard on in the pool anyway so his scars wouldn't discolor and we practically own stock in coppertone with all the sunscreen we buy.

Coumadin (the blood thinner) has also been started and will probably be taken for at least three weeks or so following Thursday's procedure.

I guess this is why I haven't heard back about my interview yet. I guess God has more important things for me to do with my time!!

We continue to beg you for your prayers and ask that you specifically pray for Connie as he undergoes his TEE and Cardioversion. Pray that God will remove his fear of doctors and nurses and that he'll keep Connie comfortable and healthy until then. Please pray this prayer as often as you can over the next week.

Thank you,

Yep, he's back in flutter

And the reason we didn't know it is that the "switch" that was activated in his pacemaker wasn't working. Erin's calling me back shortly with the plan. Dr. Bromberg is on the phone.

Here we go again - MAYBE

This is dad (Greg). Connie's been acting odd all day today. Very fussy and crying for no reason, as well as lethargic. We sent in a pacemaker check to Dr. Bromberg and he told Erin to bring him in right away. I'll update again as soon as I hear anything. Your prayers are golden!