"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Saturday, July 11, 2009

More Fun Pics!

One of his new goofy looks

Friday, July 10, 2009


MookieRoo at the St. Louis Zoo

Yes, the goat did take a bite of her skirt

Happy baby

Our little tinkerer


Do you like the new background? I thought it was a nice touch since we're having the All-Star Game here in StL next week!

Connie got his haircut yesterday and is now very handsome again! He cried the whole time:( Afterward, Laurie gave him some Smarties so maybe he'll associate getting candy with going there and remember that next time.

We have experienced first hand the power of prayer and so I ask you all to join us in praying for Ella, a fellow L-TGAer who will be undergoing her Double Switch (actually a Rastelli-Senning--the same exact thing Connie had) next Wednesday, 7/15 at 8:30am. She is three years old and a lot more aware than Conway was when he had his. She will be at Mott and her surgeon is Dr. Bove. Please ask God to guide the medical staff and give comfort to her parents and five siblings during these next few weeks. Drop by her carepage at www.carepages.com and "visit" carepage name: EllaMallon and leave a message of support for her family. As you can imagine, they are getting quite anxious. The messages we used to get literally carried us during those trying times so just know that words on a page do mean a lot, even to strangers.

Tuesday, July 7, 2009


Connie's dig level was low (only .6, I think--not sure what is ideal on that one though) so we bumped up his twice daily dose to 0.7 mls. His coumadin was 1.9 and they would like him to be in the 2-3 range (but closer to 2) so Dr. Bromberg is leaving him at the current dose of 1mg on T, Th, Sa and Su and 1/2 mg on M, W and F.

That's about all the news for today. I took Mary Kathleen to the zoo while Connie stayed with Grandma and Grandpa (he's been kinda whiny again lately. . .we did send in a pacemaker transmission just to give us some peace of mind and it looks okay, thank God!). She had the most fun on the carousel where she rode on, you guessed it, the rabbit!

He's back to asking to eat chips all the time. I hate that. Reminds me of what he does whenever he's sick (as in heart sick, not the sniffles).

Monday, July 6, 2009

Lab Visit

Connie just got home from getting his blood drawn. Today they were checking his INR level as well as getting a Digoxin level. Dr. Bromberg mentioned last time that he thought his dig level would be low since they cut his dose in half, but they had to because of the chance of toxicity now that the amiodarone has been started so they will see where his level is now and then adjust his dose if necessary to get him in the therapeutic range. Hopefully these will be our last labs. If everything is in the right range, then we'll just stay on the current doses and possibly come off the coumadin in early August. If the numbers are too high or low, they'll have to adjust the dose and then recheck it again probably in about a week.

He tried to be a brave boy but he now recognizes the place and started to cry and ask for home as soon as we walked in. It was so sad! He got rewarded with a quick visit to Grandma and Grandpa's for a swing and some cookies--they live right around the corner from the lab. If anything changes after I talk to the Dr.'s office tomorrow I'll post another update.

Sunday, July 5, 2009

Promised Pics

Proof of God's promise. . .

BunnyGirl in heaven. . .