"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Monday, May 4, 2009

Dr. has been in

and he is a big believer in what the liver can tell you. Conway's liver is still very full of blood, indicating blood backing up into the heart (heart failure indicator). He is not pleased with his intake and output either so he's ordered the echo for today, is restarting him on Enalapril, the blood pressure med he was on at home, has ordered oral lasix on an ongoing basis and now demands a calorie count. Here's the part I don't like. If his actual intake is considerably lower than it should be (which it is right now), they may place an NG tube and basically force feed him. I can't believe we're talking about NG tubes. I'm so dreading that. They also want another line in him so this afternoon he will get another IV and tomorrow he has to get a lot more labs done. They want another INR along with other stuff. His potassium is too high so he's been switched to an IV fluid that doesn't have potassium in it. We now have to write down every bite of food he takes in and count the calories. I have been pretty good about remembering it all anyway, it's just the pressure of it all now.

So, Dr. Bromberg has made some changes and said that he just doesn't want to draw this out any longer than necessary. He is trying to be conservative, but all indications are pointing to this not resolving without surgical intervention so he's touching base with Dr. Balzer today about setting up a cath for later this week at Children's. Now the concern is that he'll be a bleeding risk since he's been started on coumadin so we may have to discontinue the coumadin for a period before we can go in for that. We'll see what Dr. Balzer says.

This is not the news we were looking for, but I am tremendously relieved that Conway is content. That's the most important thing to me and makes this whole thing a lot easier to bear. When he lays there miserable, like he was before we started the Milrinone, it's just so much harder to take. At least now he's enjoying some things and showing some sort of personality. He even covered his eyes and tried to count to play hide and seek with Dr. Bromberg. What a trooper. I know that is God giving him some peace. That's what I've been praying for and He's answering our prayers.

Will post when I know more. . .like after the echo. . .if he lets me.


H. James said...

So sorry things are not moving in the direction you hoped. I am glad you can take solace in Conway at least feeling better. Whatever happens, I hope he continues to feel reasonably well and that you get some definite answers with the upcoming echo & cath.
Hang in there!

Faith M. said...

I know that this isn't the news you were hoping for. I'm so sorry. I am praying that your little man continues to feel better, and for wisdom for his docs. God is in control!
Faith Mahoney