Care4Conway: 2/24/13

Monday, February 25, 2013

Cavities and Conferences

We finally got Connie in to have his crown put on the cavity. Turns out, it affected two teeth and the dentist went ahead and filled another tooth on the other side that she had been keeping an eye on which did develop into a cavity. He's now the proud owner of a silver tooth! Just goes to show you what is important to kids! He is beaming with pride over that silver thing and can't wait to show the big sixth grade girls at early arrival tomorrow morning when he returns to school. On the other hand, I am a bit sad that our record of perfect teeth is gone. We were told when he was an infant that he would likely have bad teeth due to all the vomiting he did for 8 solid months and considering the medications he'd been exposed to during hospitalizations. To top it off, his teeth are so squished together in his mouth there are lots of hard to clean places in there. We can't help but be proud, though, of how well he handled it all. He was a little nervous yesterday when he found out he was going today, but only because he thought he was getting x-rays. When I told him no x-rays he was fine. We got there and they said that they don't allow parents back in the room while they are doing a procedure (for cleanings and exams they always have). I was not really even sure what all they were doing to him since Grandma had taken him to the appt. when we learned about the cavity so I wasn't terribly comfortable with the idea. On one hand I was relieved that I wasn't going to have to be the one to try to calm him if he became upset. He had absolutely no issues separating and was back there just under an hour. When they brought me back to see him he was on O2 for five minutes to get all the nitrous out of his system and they said he was a star patient and followed all their directions very well. He even got to pick out two prizes for being so cooperative! Although I was uncomfortable at first about not being in the room I quickly looked at it as I would any other medical procedure. I would never consider asking to be present while Dr. Bove tries to do his job and correct his heart. So why then would a dentist want a parent, who probably would be too emotionally invested (especially being pregnant) anyway, to be in the room while she works?! It all worked out and he got rainbow sherbet for lunch afterward so he was pretty thrilled. Today was also his parent teacher conference. His teacher reported that he is doing very well academically. He seems to learn quickly and retain information, especially his sight words and math. We are working on getting him to use his sight words more in his writing. I notice that he sounds out everything when he writes, even if it is a sight word he already knows. So, applying his knowledge is our new goal. He's constantly reading environmental print. Yesterday we took a trip to Babies 'R Us and when we pulled up in the parking lot he said, "What is baby russ? Oh, I mean, what is babies russ?" It was pretty cute. We've had snow here and the kids had two snow days off of school last week. He really has enjoyed being out in the cold and the snow, which is a relatively new thing for him. He can be out there for hours now, when in the past just a few minutes seemed too much for him. He's especially fond of shoveling. Unfortunately, he uses his kid-sized shovel to move the snow from the pile on the edge of the driveway BACK onto the driveway, by hurling it over his head. Silly boy! He also enjoyed sledding at Westhoff Park until he flew off his sled and burned his face on the frozen snow. He even had scrape marks on his forehead. He couldn't wait to tell Grandma George all about his sledding adventure. It amazes me how he and Mookie went up and down that hill dozens of times and the last time I took them to that park to sled he was so worn out and exhausted I had to carry him up the hill every time. We give God all the glory for how well our Miracle Boy is doing. Can't wait to see what God has planned for his life :)

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Conway's Heart Story

Conway's Heart Story

Conway David Beckemeier was born on March 3, 2007. His heart defects went undetected during pregnancy and he was diagnosed at two days of age with L-TGA, a large VSD, sub pulmonic stenosis and Ebstein’s Anomaly. Just before turning six months of age, he underwent open heart surgery to reroute the bloodflow in his heart. Called the "double switch", this procedure is the most technically challenging for pediatric cardio-thoracic surgeons to perform. The version of the double switch that Conway received on 8/28/07 was called the Rastelli-Senning with VSD closure and sub pulmonic resection. He suffered a grand mal seizure following the surgery that lasted over an hour and had several other post-op setbacks including surgical heart block, which required another operation on 9/18/07 to insert a pacemaker. Following surgery and such a long hospital stay, Conway developed an oral aversion (he would not eat) and he was 100% NG tube fed for eight months. He also lost muscle tone and required both physical and occupational therapies. In April 2008, he had a cardiac cath and attempted balloon angioplasty on his pulmonary arteries that did not work. Although his recovery was very long, he had a solid year or so of being a "normal" kid . Then in May of 2009, it was discovered that Conway was having rhythm disturbances, specifically atrial flutter. His pacemaker allowed it to go undetected for several weeks until he showed signs of heart failure and was admitted to the ICU for a week to be placed on IV heart meds and undergo cardioversion on 5/6/09. He went home and his heart function started recovering when he had another episode of flutter (6/16/09). This time, he was again hospitalized and put on IV milrinone, but he converted back to normal sinus rhythm by himself. At that time he was placed on the anti-arrhythmia drug, amiodarone. On 7/22/09 he had to be cardioverted again for yet another episode of flutter. The following week, he got worse instead of better. His cardiologist did a full work up and it was determined that his aortic, mitral and tricuspid valves were all leaking worse and were felt to be the cause of his heart failure. On 8/24/09 he had a cardiac cath and attempted ablation. The electrophysiologist was unable to induce a single arrhythmia. Then, just two days later, he went into atrial flutter on his own. He was placed back in the cath lab where he underwent mapping and a total of 17 burns were made to try to knock out his arrhythmias for good. The next day, 8/27/09, he had his second open heart surgery to repair his mitral valve called ring annuloplasty. He also had a partial Maze procedure done. His surgeries are performed at C.S. Mott Children’s Hospital at the University of Michigan (Ann Arbor). This time he was discharged just six days later! His Left Ventricular function improved drastically. In December 2010 we noticed he began getting more winded during physical activity. A January 2011 cath showed that he is outgrowing his RV-PA gortex conduit, but he was not symptomatic enough to warrant intervention. In April 2012 Conway’s fatigue increased and an echo at the end of May revealed that the ratio between the right and left sided pressures has gotten too high and it is time to replace the homograft that was placed when he was five months old. He had a cardiac cath on 5/25/12 which confirmed the echo findings. He had surgery on 8/8/12 to replace his pulmonary valve and RV-PA conduit, add an additional pacing wire to his left ventricle, and change his generator to a bi-ventricular model which is shown to preserve function and help the heart muscle pump more efficiently/effectively.