We saw the pediatrician today. Both Connie and Mook. She's had whatever bug I still have (going on almost three weeks for me) since last weekend and when I called his office last Thursday the nurse told me that if she still had it on Saturday to give them a call. Well, sure enough, Connie woke up with a runny nose and cough today so I went ahead and called and they had me bring them both in. I was glad I did go in because Mookie actually has "a pretty bad looking" ear and he decided to start her on azythromycin. He wrote the script for Connie but said to hold off on filling it until he for sure needed it. His ears are both fine and his symptoms are pretty mild compared to hers. Surprising since he usually gets everything and gets it worse. Maybe this means he won't have to be homebound all winter again like last year. We're keeping our fingers crossed that when we go to the cardiologist on 10/6 that he tells us Connie is okay to be in public from Oct-April. The pediatrician has us coming back for a recheck on 10/6 also and they'll both get their flu shots/mist at that time. We discussed whether or not Connie will be getting the RSV vaccine, Synagis, this year. It is a monthly shot (two actually) from Oct/Nov-Mar/April. The doctors have already been discussing it and they are sort of on the fence. They feel like his risk is much lower than it was last year, but they are keeping in mind that he has complex heart disease and is under two. They are going to write for it, but it all depends on insurance. I'm told the vaccine is close to $2000/injection and they are very stingy with who qualifies for it. Since our insurance is changing 10/1, this may complicate things since that is about the time they look for approvals. I guess we'll wait and see.
We'll keep you posted on everyone's health/upcoming appointments.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
Wednesday, September 17, 2008
These pics were taken recently. Whenever we say the word "pray" Connie folds his hands automatically. It's so cute. The other one is before a bike ride to pick up his sister Mookie from preschool.
Connie had two appointments this afternoon. Ms. Deb came and did PT in the afternoon this time so he could go outside in the grass and play. Normally she comes early in the morning when the grass is still wet. He walked around in the grass, walked up a slope in our front yard, played on the little climber in the backyard and practiced putting his hands in the grass to get up and then shaking them off. He should sleep well tonight!
Ms. Jenni came next and weighed him. He is up to a whopping 26 lbs. 9.5 oz.! He's gaining a pound a month and she says that is perfect for his age. She has discharged him from nutrition services since there are no concerns and he is eating and gaining well. He is back up to the 50th %ile for weight for his age. Yay!!
Our service coordinator emailed yesterday and said she wants to set up his meeting to review his IFSP. All the therapists will get together in mid-October and decide what therapies to change. So far, it sounds like we will be discontinuing OT and nutrition and PT will go to a 1X/month monitoring basis and Speech will increase. We're not sure how much they'll increase speech. Now he's getting it 1X/month and he's not saying much of anything. He did say baaaa for bath and maaaaa for mask and /d/ for all done and /b/ for blueberries. Sometimes he mimics a sound pretty well and sometimes he's just not interested.
Posted by Erin Beckemeier at 4:36 PM