Connie finally fell asleep around lunch time and was awakened an hour or so later to be moved. He was not a happy camper. We tried everything we could think of and even a walk in the alligator wagon didn't calm him down. His late lunch came and he ate 1/2 of a dinner roll and some milk and juice and doritos (couldn't get anything else into him) and was much happier. He got on a portable monitor and was able to go around on the floor in our stroller and also walking (more like running!). He showed off and played pushing the automatic door buttons.
When we got back, he'd been moved again. All our stuff was down the hall and in a room where he is now the only patient!! Yay. That means Mommy has a window seat and he even has a little area to play and move around. Hopefully we'll get to keep this set up until Monday when we should be getting out of here.
They are talking like not interrogating the pacer until right before discharge. This baffles me and I still don't comprehend how his rate can be fixed at 100 when he's up and mad and screaming/crying. To me that means he's in flutter and mode switched, but I'm no doctor.
So, despite our somewhat stressful couple of hours, things are looking great. Just the fact that he had the energy to walk around for an hour is great! I wish they had a playroom or child life on this floor. He's confined to the 7th floor but there's not much to do other than walk the halls. This is tricky with him b/c he likes to go near doors he's not supposed to and he likes to bang on the metal cabinets in the halls near the doors of patients who are on contact precautions! I have to try to corral him in certain directions while holding his telemetry monitor!! It's kind of challenging to say the least. It's better than sitting in bed though, that's for sure.
Greg and MK are coming up soon and then tomorrow Cece will get to visit. I'm sure that will be a nice distraction for him.