"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Saturday, May 2, 2009

Not so fast. . .

Well, the reduction in heart rate to a max of 110 didn't do the trick to helping him feel better. He threw up big time around 6:30 (from his 2:30 lunch and 4:30 juice) and Dr. Bromberg came back and said that he's just going to be harder to bounce back from this failure than he thought. Now we are not coming home tomorrow as they have started him on a milrinone drip (IV). They have to draw blood twice a day to check his levels so that consists of a toe prick and a ton of squeezing. Now that he's on coumadin, that should leave some nice bruises! The coumadin levels are not built up in his system yet so he's not bleeding easily just yet.

He was getting the most sound sleep he'd had in days when they had to come poke him. He's been up since and had some saltine crackers and sprite. Dr. Bromberg wants us to go a bit easier on the tummy so we didn't order him a dinner of real food. He might get some cheerios later if he shows any interest. He is sitting on Daddy's lap watching a Baby Einstein video from Child Life Services. Ms. Chris would be so proud of all the words he's practicing while he watches. He blew Nurse Laurie a kiss when she left and said bye and waived. She'll be back in the morning and has requested to have him if she doesn't get transferred to the NICU or something.

So, we've had a bit of a set back, but nothing we can't find a way to manage. Dr. Bromberg will be back to check on him in the AM and gave them his numbers even though he's not the one on call this weekend.


cuppie12 said...

Wow, you guys are seriously AMAZING. To stay as strong and positive as you have in the midst of so much turmoil is simply awesome. Connie is very blessed to have such wonderful parents. And Mary Kathleen, my God daughter, what a cutie - that was such a sweet prayer she said! Connie has obviously been in our prayers, and will be tomorrow at 8 a.m. in church. I hope you have a stress-free and restful night. Love, Jessie

H. James said...

Slow and steady, right? He'll get there!!

Natalie Bourque said...

my daughter, brittany, was born 8/24/98 with the exact condition... ltga and a huge vsd between her 2 lower chambers. We were unable to get the double switch because there were vessels that would be disabled if they closed her vsd so we had the fonten and glen shunt, as well as a pa band. I found your info on the yahoo site.I also have a blog that I have just recently started so I will add and look forward to hearing your stories. My thoughts and prayers are with ya'll and I hope that someday soon all of these complications are just a past experience that you grew stronger through. God bless ya'll. Natalie Bourque