"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Tuesday, November 20, 2007

The Latest on the Oral Motor Front

We got back from Child Development where Connie once again showed off his progressing oral motor skills. He was able to take about 15ml of cold, apple juice flavored water from the syringe with a preemie nipple on the end. He never sucked the nipple, but would chew it a bit. He swallowed well and didn't keep it all in the back of his throat. Toward the end of 15 minutes, he had a big cough but was able to cough and didn't throw up. We moved on to some applesauce mixed in baby cereal. We just dipped the spoon in the cereal and rubbed it on his lips. He wanted to be the one to move it into his mouth. He did a couple of swallows and was receptive to the texture, but tired of the whole process so we stopped. We have an appointment to do the "swallow study" at St. John's on December 13. They will have him swallow some barium and take an x-ray to see where it's going to make sure he is not aspirating it. That is really the next step before we can move forward with increasing the feedings. At that time, we will know if it will be a matter of weeks or months before he is able to tolerate taking more food. If it looks like it will be months, the g-tube talks will resume, meaning that will likely be the course of action. If it looks like he may be eating a good deal orally by mid-January maybe, then we will just leave the NG tube.


Anonymous said...

What a little show-off! He wanted to prove to those people that his mommy's been following orders and practicing with him :) It's awesome to hear how well he's doing, he's really been moving forward by leaps and bounds. Funny, I just got the notification that the site's been updated, guess I was just a little ansy to see how things went. Don't know about you, but cold weather is moving in. Yesterday it was 70 and today it's 43, no wonder Claire's on cold #2 this season. They're even mentioning snow! 'Bout time it is the middle of Nov. already.

Before I get sidetracked and time slips away, I want to wish you, Greg and all of your family a very Happy Thanksgiving. This is certainly the season to be thankful for the many blessings in our lives, and for those of us along with you on this journey, we see each and everyday the blessing Conway is in your life and you are in ours. I feel so blessed to have you as a friend. Many Blessings to you and yours this holiday!

Love, Caryn, Adam and Claire

Anonymous said...


Great news on Connie's tolerance to try tasting (or at least putting) some new things in his mouth!!

Sounds like the number of good days is increasing while the not so good days are decreasing!

Want to wish you and your family a Wonderful Thanksgiving! I will be sure to thank God for your miracle with Connie as well as the miracle for David Long!

The holidays can seem a little overwhelming at times, but I know I am definately going to look at them with great anticipation to be with those we love and to be thankful that I am able to share the holidays with everyone!

Have a great holiday!

Love Kim Froehlich