"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Friday, March 27, 2009

Re-eval and prayer request

We had Connie's re-eval yesterday to determine what therapy needs exist for the next six months. Carey (coordinator), Deb (PT) and Chris (SLP) all attended. Of course they fussed over him because he's so darn cute. He graced them all with his piano playing abilities and showed off his new "Melmo" (Elmo) books he had just gotten from Barnes and Noble earlier in the day.

PT: Deb is impressed with his ability to walk down the slope of the front yard and to go from grass to concrete surfaces and down different levels and small steps. She is still concerned about his ankle strength and wants to continue getting better at tip-toeing. He is going to get new orthotics but they will be the same kind (Sure Steps) as the one's he's in now. I'm so bummed because I desperately want him to wear those cute navy blue stride rite fisherman sandals this summer, but I guess we'll wait one more year :( He'll look darling in his new nike kicks though. We're decreasing his PT services to one hour every other month! We'll have to get our Ms. Deb fix at church, I guess!
Speech: Chris says Connie is making progress every week. He is still leaving off word endings and initial consonants so his intelligibility is rather poor. We are trying to use the phrase, "Use your words" with him to get him to stop relying on signs and gestures to get his point across. It will be hard for us to do this because we just know what he means and he doesn't have to use speech. It will be good for him to be around new people and kids when he starts "school" next week and maybe he'll pick up some new words and good speech habits. She said since he is so smart we are going to have to sabotage him and "ruffle his feathers" a bit to get him to verbalize more. She is going to try to see him a few extra times at school and try to see if a new environment is motivating for him. She'll keep coming to the house 1X/week. We asked about increasing, since the ped. recommended it, but since he's showing improvement, it wouldn't be covered at this point.

The team will reconvene in late Aug. or early Sep. for the next re-eval and to start planning the transition to services from the local school district. Then they will have us sign releases to communicate with the early childhood people in Fort Zumwalt and then just before he turns three FZ will conduct testing to see what he qualifies for. He may qualify for speech still, which could mean that he would be attending United Services for his therapy and receiving it during preschool setting. It may mean that he will go there for preschool full-time, but we're not sure yet what his needs will be at that time. If that were the case, he would start right when he turns three rather than waiting until the following school year, the '10-'11 school year like we would have done if we put him in Mary Kathleen's preschool. That's still some time away, but it really hit me when they brought it up yesterday. I guess it will be here before we know it.

Now that you've gotten the latest on WonderBoy, I want to ask that you pray for a fellow L-TGA kiddo who will be undergoing his big double switch operation like Connie had next Thursday. He lives in London, UK and his name is Oscar. He is a lot older than Connie was when he had it done (he's three now) and his mom is worried about the emotional trauma involved. He's saying he doesn't want to have it done and asking why it has to be done. Please pray that God gives his mom Laura the right answers for her little boy and that He gives her peace to know she's made the right decision. We know all too well the feeling of taking a "healthy" boy in for surgery and the questioning and doubt that looms with such an action. I'll post updates as soon as I hear how he's doing.

1 comment:

H. James said...

Wow, your post could have come from our life here! Bailey has the Sure-step orthotics as well. They have really helped her with walking. She ALSO needs to work on tip-toe walking. She can't jump, either. AND Bailey started preschool right when she turned 3, not waiting until the fall when she would have started. I was TOTALLY freaking out! She is my first, however, so maybe you'll be more prepared than I was, since you've already sent one of your "babies" off to school.
Thanks for the great update. We are, of course, following Oscar's progress as well.