"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Tuesday, December 4, 2007

Update on Mary Kathleen

Dr. Sanchez says that it is possible that the hair follicles are just irritated. She did say that the bumps do resemble warts but since she has no other warts anywhere, that's not as likely. We are going to treat it for now with some medicated shampoo a couple of times per week and daily application of a topical ointment. If it goes away we can stop the treatment. If it is still there in two months they will do a biopsy :( If it changes more before then we will go back in. So, we are rejoicing for now that she doesn't think it is cancer or anything at this time!!

I hesitated to update on Connie yesterday because I was afraid I would jinx it. He went from Sunday afternoon until the early morning hours on Tuesday with NO THROWING UP! Of course he's thrown up four times today, but compared to last week today was even fabulous! I know it is because of everyone's prayers. Please keep them coming.

He got three shots today and had his checkup. Dr. Davis was pretty pleased. We like going there because everyone thinks he looks so big and so great. They aren't analyzing every ounce! He was 30 inches (90th percentile), 21 lbs. even (just over the 50th percentile) and 45.5 for head circumference (50th percentile). On his check out sheet he wrote for the diagnoses: Healthy, Heart Disease, GERD, Developmental Delay. It was hard to see the last diagnosis in writing. I know there is a reason for it and it won't be forever, but it was still kind of humbling.

Greg had a fabulous idea tonight. Lately Connie has been going to bed by seven at the latest but is waking up around 9 and wanting not going right back to sleep. To get him back to sleep on his own we've been putting the vibrator they gave us at the hospital in bed with him and it is enough to lull him to sleep. It goes through two batteries a night and sometimes doesn't even last the whole night. So, Greg got a chair massager that we had lying around the house and plugged it in and put it under the mattress. Now the whole bed vibrates and it's not eating batteries! Isn't he a genius?

Tomorrow he'll get weighed by the home health nurse so I'm anxious to see on the same scale we usually use how he compares.

5 comments:

Anonymous said...

Don't you have an older daughter too? Why is she almost never mentioned or pictures or her with Conway? Why is it the only 2 of your children you talk about on a regular basis are Conway and Mary Kathleen? Having 5 children myself, I know that the illness of a younger one (my youngest has had 7 surgeries) is hard on the siblings as well as the parents. They don't get their fair share of attention while the parents are having to deal with the medical issues of their siblings. I've been reading your blog for months-praying and following conways care and have been wondering why your older daughter is so rarely mentioned.

Anonymous said...

Erin, You have done an amazing job on this site. The pics are great and your updates so inspiring of a mother's love and devotion. My fav pic is of Connie in his highchair. He's growing up and changing in the face. Its so good to see the sparkle in his eyes. You're an awesome mom and we have an awesome God. Hope to see you Friday. Love ya, Marsia

Shari said...

Erin:

I am praising the Lord for the news on Mary Kathleen. Yay! I praise Him too for Connie's progress. Know I continue to pray. If I don't check in the next few days it's because we are having computer trouble.

Loving you from afar,

Shari

Shari said...

Erin:

I hope I didn't offend you in my last comment when I asked if maybe we could see a pic of Celeste. I am sorry about the comment made by anonymous. I got to thinking about my asking and maybe thought it was not OK to ask.

Praying as always!

Shari

Anonymous said...

Dear Conway and family,
I have been reading your journals and I know our prayers are being
answered. Conway is doing sooo well and I am so glad and grateful
to God and I wish for you all and
Conway a very Blessed and Merry
Christmas and a wonderful 2008. I
will certainly keep the prayers
going and God Bless you mom and
dad and sisters. I just know this
baby is going to get well.
Lovingly, Anne Louque, Baton
Rouge, La.