We are discovering that the NG tubes with a little extension and some weights at the end that goes into the stomach tend to stay put a little better during violent vomiting episodes than those without. 2X today he has thrown up his tube out of his mouth. Next time it gets changed or thrown up we will grab the one with the weights to replace it.
Conway had a pretty good afternoon. He took a nice nap and did great with his "homework" again. We tried the biter biscuit after the water on the spoon and he played with it for awhile and then threw it. Belle (that's our dog)liked that and decided hanging around his high chair was a good idea. Little does she know that he rarely has anything to eat in it! He looked shocked that it was gone so I got him another and split this one with Mary Kathleen. She kept saying that, "When Mookie is a baby she can have a biter biscuit." She hears us say that when she's older she can have things like gum, etc. so I guess she figured if she was younger she would be allowed baby food items. Makes sense to her! He chewed on that one some and then lost interest. Mary Kathleen helped put the spoon to his mouth and he seemed very engaged while she was there helping. Please pray for continued progress in the area of oral motor. He is making progress, but it is slow. It seems we have a couple great days and then a bad day. It is hard to remember how far he really has come. I want him to be all the way back, but it won't be overnight.
Along the lines of progress, I'm happy to report that Mary Kathleen has pooped in the potty for the first time!! She's been peeing for a couple of weeks but today was the first time for #2. She didn't even say she had to or anything. I took her to the potty after her nap and when she said she was all done there was a big surprise for me!
Lord, We thank you for continuing to show us your mercy and love. We know you are working in us and through us, especially Connie. Grant him rest and comfort tonight so that he may continue to heal and get stronger. We are trying to remember to praise you, even in the midst of the storm. Even the storm is a gift. Please bless our loved ones and all those pulling for and praying for Conway. We ask these things in your son's name, Amen.