Today was a great day and very reassuring for us. First we saw the GI doctor where his weight has again increased and she is very pleased with that. We told her about his progress with oral motor stimulation and what the child development people said and she was even more impressed. She said they are usually the ones pushing her to have the surgical g-tube placed in order to get rid of the ng tube but if she said they must really have hope for him and that they are not usually that optimistic. That made me feel good. I told her that they wanted a goal of his to be to get onto bolus feeds (like every three hours rather than continuous) so we changed him over today. He will get 100mL at 7a, 10a, 1p, 4p, 7p and 10p. If he throws up less than an ounce each time (less than 1/3 of the feeding) then in about a week we will try giving him 120mL every four hours for a week or so and then if that goes well we'll try the 150mL just five times per day. That would be our goal. I am to call her in about a week to let her know how it is going or sooner if he's not tolerating his feeds.
Next we had a Physical Therapy Evaluation by First Steps. The therapist came to the house and I had to wake Connie about 1/2 way through his nap so it took him a few minutes to really get into it. She was very surprised after reading the therapy notes from the hospital how much better he was doing now. Rather than rating his skill level at a certain age range, she was more comfortable just labeling him as "a weak baby" right now. He is doing some things around 4 months or 5 months, but he has a lot of emerging skills that he can't get full credit for on the rating scales because he doesn't do the entire skill or task. We're focusing now mainly on trunk and head control. His legs and lower body are stronger than his upper body and torso. She gave me lots of positions to work him in and ideas for home therapy. Monday we will develop a plan for future therapy visits and I'll get the report in writing about today's visit.
Overall it was a great day for Connie. Everyone who sees him is impressed. Even other parents in the waiting room! Oh, and the Synagis shot is scheduled to be given Tuesday. Finally!
Side note for all parents out there: There seems to be a consensus among those in early childhood that the bumbo seats and bebe pods are not very beneficial. Everyone who has dealt with him since we've been home seems to agree. They don't help a child learn to sit at all. They do help children develop head/neck strength, but that's about it. So, if you're on the fence about buying one, skip it.