"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Wednesday, July 20, 2011

General Update and Swimming

Just wanted to pop on and tell everyone that Connie is doing well. It's been a little over a month since the last update so I thought I'd pass on a few new things about him.

He is tolerating the heat far better than he ever has in the past. Everytime we're out and about I think to myself how "we couldn't have brought him to this last year" or "how miserable he was last year at this".

We took him on his first "train" ride recently to Union Station via the MetroLink. We ate lunch at the Hard Rock Cafe and fed the fish. He loved it!

July 4th has come and gone and even though the parade was a little rainy, he had fun for most of it. Patience is not his strongest skill and there was a lot of waiting. Waiting for the floats and candy. Waiting for the fireworks to start. This year he was also brave enough for the rides at the carnival AND the fireworks. He was very disappointed that he didn't meet the height requirements for most of the more thrilling rides so I've convinced him that certain foods (fruits and vegetables) will help him grow bigger so that he can ride them soon.

Connie has developed a passion for the water. Last summer he would barely let go of the sides of the pool and never even think about putting his head in the water. This year he is jumping off the side and going under. He can even jump in and swim under water across the pool! His favorite thing to do in the pool is to have Greg throw him in. He's so fun to watch. We went to Raging Rivers earlier in the week and he even did the water slides. His favorite activity there was the giant wave pool.

It seems like summer is already winding down, unfortunately. We got a postcard in the mail from his preschool and he'll be attending on M, W and Th mornings. He's all set with his James (from Thomas the Tank Engine) backpack and he chose a green binder to be his portfolio. We put a Thomas cover on the binder and he's excited to ride the school bus again.

Soccer has kind of come to a stand still. The last two weeks have been cancelled due to the high heat so hopefully it'll cool down here enough soon that he can get back out there. Practices for his fall team at Assumption will likely begin after Aug. 1.


Anonymous said...

Can't wait to hear how Connie's first day went! Hope your first day at preschool went well also Erin!
Kate Becker

Anonymous said...

We came across your site while searching for info about heart defects -- Conway is so cute!! I've enjoyed reading your blog and hearing you story. We have a 3 month old, Koal, who was born with cTGA, pulmonary atresia, VSD, ASD and some other issues -- so many similarities to Conway! We are in the process of making decisions about our next steps for surgery, as our children's hospital here in Kansas City doesn't perfom the Senning-Rastelli needed. I would LOVE to be in contact with you more about your time in Ann Arbor and your journey thus far. Our blog for Koalton is:

Hopefully we can be in touch more soon! Hope all is well :)

God bless you,
Kerry Schieber

The Schiebers said...

Hey Erin,

We found your blog while searching for information on certain heart defects. Conway is SO cute, and we've enjoyed reading through your blog and hearing your story. Our 3 month old, Koal, was born with ccTGA, pumonary atresia, a VSD, ASD and some other issues, and had his first open heart surgery at one week old. He is doing well now, but we are in the process of making decisions about his next surgery. We've been told our best option is the Senning-Rastelli (or a modified version of sorts) and that Michigan or Boston is where we would need to travel. We live in Kansas City, and would love to be in contact with your more about your time in Ann Arbor and preparing for surgery, etc. Our blog for Koalton is:

Please check it out...sounds like Koal and Conway have a lot of similarities with their little hearts :) Hope all is well there. Look forward to hearing from you!

Kerry Schieber
Kansas City, MO