"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Saturday, January 16, 2010

Maybe a Glimmer?

I gather many of you did not quite know what to think of the last post from Thursday regarding his check up. In a nutshell, here's how we took the news: DEVASTATED!
While nothing is imminent, it sounded to us like our best case scenario was that his function could improve with some simple changes to the pacemaker. Worse case scenario is that this is actually a life threatening disease-one for which there is no cure.

Well, one test we had done yesterday was that notorious BNP to measure heart failure. We were kind of expecting it to be elevated above what it was in October since his echo and physical exam are showing that his heart function is decreased. In October, 8 weeks after his surgery and when he was absolutely doing phenomenally heart-wise, his BNP was 1800 (normal is under 100). Guess what it was yesterday? 439! It has dropped significantly so it's quite puzzling to me that he could actually be getting worse. I haven't heard back from the doctor yet about what this may or may not mean, but for the moment we're taking it as the best news we've had all week! Hope is the new theme around here... for the day, anyway!

Side note: He's developed a nasty rash and it's been narrowed down to one of two possibilities. Either it's an allergy to penicillin or it's Mono. We get the lab results on Monday to determine if it's mono. He's stopped the antibiotics he was on for his ears and whatever bug he had and his ears looked great today.


Abi's Mom said...

Connie! Hang in there!

Abi is sending hugs and kisses!!


Aaron and Erica said...

We're praying for you guys and the Dr.'s, that they will have wisdom in how to best treat Conway.

I always feel like I learn something from your posts...thank you for being so detailed (although I know that is not your sole purpose for blogging :)