Saturday, May 3, 2008
Are You Sitting Down?
Because you won't believe what I'm about to tell you. Connie just ate one and one third jars of baby food! Doesn't seem so great for a 14 month old, but considering the most he's ever eaten is a couple teaspoons, this is unbelievable. We're talking major milestone here. Yesterday he threw up his tube and instead of replacing it, we tried orally feeding him b/c they always tell us to take advantage of the opportunity for him to eat without something in his throat. Well, he was a bit more receptive so we kept it out and fed him again orally before bed. When we tried to give him his meds he threw up b/c he didn't like the taste of the digoxin. This morning, I increased him to 7 babyfood spoon dallups (sp?)and he took it. He isn't drinking a ton, but he is more willing to drink the peptamin every time we give it. Then today after his nap, we sat him back in the chair and I started with seven dallups and he just devoured it so I kept going and he finished the entire jar! I stupidly tried to give him some meds orally and he threw up again. I didn't want him to have that taste in his mouth so I gave him some fruit medley babyfood and he had another 1/3 jar. I put the rest of his meds in some water and gave him that in a cup. He proceeded to throw all of it up but drank some plain water after that. This kid is amazing! We're going to keep it out and try again in an hour or so and see if he'll eat more. We're just playing it by ear right now and praying for God's will and guidance.
A big thank you to Connie's fan club for braving the gusty winds and cool weather to come out for heartwalk this morning. It was great to see Grandpa George, Great Aunt Barb, Meghan and her friend Emma, Nicholas, Mary, Clare, Cece, Mary Kathleen, Kathy Brown, Judy Schoene, Mary Ann Lyons, Carol Stadler, the Dietrichs and Aunt Julie. Connie even did a little walking (holding on to my hands, of course) himself. Your time and donations to the American Heart Association mean so much to us. And yes, my goal for next year is to get his face on one of those Survivor posters. He's more than a survivor, he's thriving!
Posted by Erin Beckemeier at 4:20 PM