Care4Conway: Fundraiser

Saturday, March 15, 2008

Fundraiser

Carol has organized another fundraiser to help offset the expenses for Connie's medicine and office visit copays, etc. Here's the info:

Care4Conway Candle Fundraiser
Now – thru March 30th ALL Jar Candles $18

Trumpet Jar Candle
burns 35-40 hours For scent & color choices go to:
www.partylite.biz/daretobelieve
Available Scents:
Agave Nectar
Spiced Vanilla
Raspberry & Thyme
Ginger Lemon Meringue Pie
Coconut Milk Chocolate

Barrel Jar Candle
burns 55-60 hours burns 55-60 hours
Available Scents:
Crème Caramel
Tonka Bean
Ginger Pumpkin
Strawberry Rhubarb
Herbal Mint

Hurricane Jar Candle
burns 70-80 hours

Available Scents:
French Vanilla
Cherry Orchard
Cinnamon Sticks
Mulberry
Wild Fern
Seaside Mist

Box of 6 Votive candles
$7.50

Available Scents:
White (unscented)
Coconut Cove
White Gardenia Truffle
French Vanilla
Spiced Vanilla
Tonka Bean
Ginger Lemon Meringue Pie
Crème Caramel
Yuzu & Lime
Mango Tangerine
Cherry & Papaya
Pineapple & Pomegranate
Ginger Pumpkin
Nectartini
Bird of Paradise
Strawbery/Rhubarb
Orchid & Pink Peppercorn
Raspberry Thyme
Blackberry Honey
Fig & Olive Grove
Cherry Orchard
Exotic Spice
Cinnamon Sticks
Mulberry
Coconut Milk Chocolate
Honeydew
Herbal Mint
Bayberry
Wild Fern
Agave Nectar
Seaside Mist
Bella Luna
Teakwood & Cardamom
Sun-Kissed Cotton
Mandarin Basil
New Leaf & Aloe
Unwind
Relax
Revitalize
Goji Berry Chocolate
Acai Berry Mist
Elderflower Springs
Hinoki Steam
For scent & color choices go to:
www.partylite.biz/daretobelieve

Orders must be received via email, phone, or mail by March 30th

To order candles:

1)Email order information to Care4Conway@gmail.com

2) Call Theresa Charles at (636) 795 2864
(636) 724 1997

Payment for candles:

Total = # of jar candles x 18.00 + # of boxes of votives x 7.50
(Shipping, if needed, will be provided at no cost to you)

1)Make check payable to Theresa Charles
Mail to Carol Stadler, 1535 Country Bend Drive, St. Charles, MO 63303

2)Pay via Visa/MasterCard/American Express/Discover via Care4Conway.com website,
click on donate button , enter in the total of your order.

Sell to your friends and family, receive a bonus for your help:

1)Sell 10 dozen (20 boxes) of votives – receive one dozen votives FREE!

2)Sell 10 jar candles – receive on jar candle FREE!

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Conway's Heart Story

Conway's Heart Story

Conway David Beckemeier was born on March 3, 2007. His heart defects went undetected during pregnancy and he was diagnosed at two days of age with L-TGA, a large VSD, sub pulmonic stenosis and Ebstein’s Anomaly. Just before turning six months of age, he underwent open heart surgery to reroute the bloodflow in his heart. Called the "double switch", this procedure is the most technically challenging for pediatric cardio-thoracic surgeons to perform. The version of the double switch that Conway received on 8/28/07 was called the Rastelli-Senning with VSD closure and sub pulmonic resection. He suffered a grand mal seizure following the surgery that lasted over an hour and had several other post-op setbacks including surgical heart block, which required another operation on 9/18/07 to insert a pacemaker. Following surgery and such a long hospital stay, Conway developed an oral aversion (he would not eat) and he was 100% NG tube fed for eight months. He also lost muscle tone and required both physical and occupational therapies. In April 2008, he had a cardiac cath and attempted balloon angioplasty on his pulmonary arteries that did not work. Although his recovery was very long, he had a solid year or so of being a "normal" kid . Then in May of 2009, it was discovered that Conway was having rhythm disturbances, specifically atrial flutter. His pacemaker allowed it to go undetected for several weeks until he showed signs of heart failure and was admitted to the ICU for a week to be placed on IV heart meds and undergo cardioversion on 5/6/09. He went home and his heart function started recovering when he had another episode of flutter (6/16/09). This time, he was again hospitalized and put on IV milrinone, but he converted back to normal sinus rhythm by himself. At that time he was placed on the anti-arrhythmia drug, amiodarone. On 7/22/09 he had to be cardioverted again for yet another episode of flutter. The following week, he got worse instead of better. His cardiologist did a full work up and it was determined that his aortic, mitral and tricuspid valves were all leaking worse and were felt to be the cause of his heart failure. On 8/24/09 he had a cardiac cath and attempted ablation. The electrophysiologist was unable to induce a single arrhythmia. Then, just two days later, he went into atrial flutter on his own. He was placed back in the cath lab where he underwent mapping and a total of 17 burns were made to try to knock out his arrhythmias for good. The next day, 8/27/09, he had his second open heart surgery to repair his mitral valve called ring annuloplasty. He also had a partial Maze procedure done. His surgeries are performed at C.S. Mott Children’s Hospital at the University of Michigan (Ann Arbor). This time he was discharged just six days later! His Left Ventricular function improved drastically. In December 2010 we noticed he began getting more winded during physical activity. A January 2011 cath showed that he is outgrowing his RV-PA gortex conduit, but he was not symptomatic enough to warrant intervention. In April 2012 Conway’s fatigue increased and an echo at the end of May revealed that the ratio between the right and left sided pressures has gotten too high and it is time to replace the homograft that was placed when he was five months old. He had a cardiac cath on 5/25/12 which confirmed the echo findings. He had surgery on 8/8/12 to replace his pulmonary valve and RV-PA conduit, add an additional pacing wire to his left ventricle, and change his generator to a bi-ventricular model which is shown to preserve function and help the heart muscle pump more efficiently/effectively.