"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Friday, July 31, 2009

Ella Update

Ella, the little girl who's DS was postponed a couple of weeks ago, did indeed have her surgery today with Dr. Bove. Just got an update from her mom that she is out of surgery and did great. Dr. Bove described her as "echo perfect" when referring to her heart function. Please pray that her recovery goes as smoothly as her surgery.

All is well in ConnieLand. We're having a better day too. Talking with our pastor helped a lot and we also found out that this weekend at all masses they are doing "Anointing of the Sick". We will most certainly have Connie participate in this sacrament. What perfect timing!

Dr. Bove's office has received the info from Dr. Bromberg. I called this afternoon to confirm and Kim, his secretary, said that she was uploading the CD into their computer system as we spoke and was faxing Dr. Bove the accompanying note. She said he had been out of the office for a week and has a mile-high pile on his desk. Hopefully Connie's report falls on the top of the pile and will be looked at and addressed first. The next step is Dr. Bove will contact Dr. Bromberg. He may surprise us and call us too, but we're not holding our breath. Dr. Bromberg said to give him until the middle of next week to hear something, so it will be an exercise in patience for us for sure.


Anonymous said...

Thanks, Erin, for keeping us in touch. Prayer does change things, and I know all of this is in God's loving hands. He will not let go of Connie, neither of you and Greg. He will give you the strength and patience you need. Somehow, this is in His plan.
Love, Sr Josephine

meesha2601 said...


So happy the surgery went well we are continueing to say prayers. We will be praying for your continued strength and patience and for Connie to have good days.

Heart Hugs,
Nicole Hoagland mom of Lorelei

H. James said...

Hi Erin-
We've been on vacation for a week & missed all the goings on. Wow.

I am glad the Lasix seems to be helping and Connie is feeling better. You post about a new "good day" really hit home for me. We have had those feelings for a long time with Bailey and sometimes have those stark reminders when watching other children do normal kid stuff.

Anyhow, I am keeping up hope that Dr. Bove will come back with another answer besides transplant for Conway. There can be vast differences in opinion with these things, as you know, so hope for antoher option seems very reasonable!

Thank you for all of your updates. You and your family are in our thoughts.

Heather, Tim, Bailey & Libby