She hustled the whole hour! Way to go Mookie!
Brother came along to see what all the fuss was about.
Ready for first practice. Been counting the days.
Thanks for checking in. Connie had a very good, maybe even great day. He played, jumped, talked and ate more than he has in days. We praise God for hearing all of our prayers and for giving him some peace and allowing the meds to help his heart function under less stress. We spent the day having speech therapy, exchanging Mookie's soccer shoes and going out to lunch. We had too much fun trying to nap (me, Mook and Connie) that we never slept but we rested some. Then after a quick snack it was off to Mary Kathleen's first soccer practice ever! Connie tagged along too. He didn't eat dinner but had a bedtime snack. His eyes look a great deal better today so it's good that we were able to take a bit of a break from the Lasix for a day.
While Connie has improved, we have kind of gotten stuck in a rut. Greg and I look across the room at each other several times a day and both just start welling up with tears. For me, I'm finding as long as I'm busy taking care of the kids or updating people via phone or computer, I'm "okay". Once it gets quiet and there's no one left to share with, that's when it starts getting hard. That's when my mind goes numb and I feel almost paralyzed. Little things like watering the flowers or even exchanging those shoes today feels like such a chore. Like, "who cares about any of this stuff? My child may have to get a transplant. None of this other stuff matters." But it does matter. There is still life to be lived and we're going to miss it if we don't pull up our boot straps and face this. Like my friend Sarah, who I met in Michigan when we were there in 07 said, "There's still snack day at preschool." By this she meant that even though we may be in this situation, dealing with life and death, our other kids still have their lives and important things to them and we still have commitments that have to be met. It's just so hard. We're meeting with our pastor tomorrow morning to try and get a better understanding of suffering and just to pray with him and have him bless and pray over Conway. We pray that this helps us get some peace. It just feels like we've been blindsided. The whole reason for having a double switch was so that the word transplant would never have to enter our vocabulary and now it has, and so soon. Makes me question why we put Connie through all that suffering from 8/07-5/08 just to end up needing one (transplant) about the same time he would have probably needed one had he never been switched. Sorry to be such a downer tonight. It was just a pretty hard day all around.
Also, don't forget about dear Ella tomorrow morning as she undergoes her double switch.