I never thought I would say that I was relieved that my little boy has to undergo open heart surgery, but after today's appointment, there is a certain sense of relief knowing that the problems are identified and are going to be addressed. The sooner we address them, the sooner Connie can, as Dr. Bromberg put it today, "get back to the business of being a little boy."
Today's echo showed the valves are leaking badly and Dr. Bromberg feels the biggest culprit and the one that has changed the most is the mitral valve. He also feels like this valve has a great chance of being repaired and still hopes we can avoid the need for an artificial, mechanical valve. The ejection fraction, which was 55% in May, was 32% today. This is a number that shows how well the blood is pumping out of the left ventricle, the main pumping chamber. While 32% is not good, it is also a little subjective since he has been switched. So, it also isn't devastating or anything. Just another number to follow for now.
The next step is to put today's echo and clinic notes on CD to be sent to Michigan for Dr. Bove's and Dr. Dick's surgical opinion. We hope that they will have the opportunity to review the info by this Friday. On Wednesday of this week, Dr. Bromberg will present Connie's case to the team at St. Louis Children's as well and hear their opinion, especially what the EP, Dr. VanHare has to say about his approach to getting rid of the atrial flutter. Given how busy the program is in Michigan, Dr. Bromberg said it would probably be two weeks before Connie could get on Dr. Bove's surgery schedule. He may get preference since he's an existing patient, but it looks as though the likely time frame for valve repair/replacement is middle to end of August.
To help out in the meantime, Connie has been prescribed Lasix (a diuretic) to relieve some of the symptoms and another drug to even out that thyroid number that was off last week.
I'm sure I'll post more details about today's visit later. I'm just not feeling too wordy right now (I know this is a surprise to my friend Michael M.!).