Thursday, July 12, 2012
Left the hospital at quarter to five and Connie took a very long nap. Just after he woke up and got dressed to go to the pool, the phone rang and it was the cardiologist we saw today. She said plans have changed and after further review of today's echo, they want to replace a valve as well. They are looking to use a donor cadaver valve in place of his native pulmonary valve, along with the new conduit. This is a disappointing development, as it means he will now need valve replacements in the future. The average valve lasts 10-15 years, but that's what conduits are supposed to last as well and here we are just five years later. Oh, and he threw up again tonight after another headache. He doesn't have a fever and says it was a migraine. Hospital seems okay with the news. After welling up for just a moment while I was on the phone with the doctor, I have given it to God and trust that He knew about this even before Connie was conceived. Also, Dr. Bromberg reminded me that we are one of the best places in the world and if their collective, brilliant minds think this is what is best for our boy, then so be it. Please keep praying. We are at peace.
Posted by Erin Beckemeier at 8:36 PM