"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
--Jeremiah 29:11

Sunday, August 29, 2010


What a difference a year makes!
After his first surgery

Post-op 2009 repair

Friday was the one year anniversary of Connie's mitral valve repair and radiofrequency ablation at the University of Michigan. Yesterday marked three years since the big double switch, in which his entire bloodflow and structure of his heart was altered. Many of you who have been following his story since that time remember what tremendous complications and setbacks he suffered in the days and months that followed. It is truly remarkable to see him today, doing what any other three year old can do. Instead of laying in a hospital bed this time of year-as he's done two of the three years he's been alive-he's swimming, kicking soccer balls on the sidelines at Mookie's games, quoting lines from Max and Ruby, counting to 30, using his manners and enjoying being a little boy. I almost cried earlier this week when his preschool teacher told me that he's "ahead of the curve in a lot of areas". She went on to say that he's the "little model of the class" and that she points to Connie to show others in the room how to do things or how to behave. Back in 2007 we were praying for God to take him and put an end to his suffering and now we are just in awe of the blessing he's been in our life. We know that his future is uncertain and we've definitely seen how quickly kids like him can deteriorate, but we try to make a conscious effort daily to soak up every special little part of him, even when he's being a stinker! Here's part of the "thank you" we sent to Dr. Bove to mark the anniversary.

Yes, he LOVES pickles and when they are gone he apparently likes the juice!

Wearing sisters rollerblades with no pants on. He's gonna hate me for this one someday!

1 comment:

Annie Whitelaw said...

I have been following Conway's story since the beginning and I could not be happier that he is doing so great. I check back often and it makes my day to see pictures of him so happy and healthy!