Gus has taken a turn for the worse. He's been losing a lot of blood. Losing it faster than they can replace it. He has to be on blood thinners so that his LVAD (pump) doesn't get clots, but that therapy is causing him to not be able to clot. Additionally, he suffered a stroke this morning and has blood on the brain, causing continual seizures throughout the day. This has affected his status on the transplant list, causing him to be removed for now. Please pray for this family and this child-that God will comfort them all. Greg and I have been pretty shaken by his story.
We invited grandparents, aunts and uncles and cousins over today to celebrate Connie's third birthday (coming up on Wednesday). He had a great time and even sang the "Happy Birthday" song to himself! It was so cute and so fun to think how far he's come. Speaking of how far he has come, we had to say goodbye last week to Connie's wonderful First Steps therapists who have been coming to the house weekly for the last 28 months. There were times that he would have 4 visits a week from the various therapists. He was down to just speech therapy weekly and physical therapy once every other month. He was recently evaluated by our local school district to determine eligibility and whether or not he will continue receiving services. We have our meeting with them tomorrow to go over the results and I'll let you know how it goes. We are so proud of how far he's come!