You know you're getting close to the surgery date when the doctor's office calls you and wants you to start decreasing and stopping certain meds. During the catheterization and the EP study, they will actually be inducing atrial flutter so that they can map out exactly the part that will need to be cauterized or whatever during the surgery. Therefore, he needs to stop the amiodarone by next Monday and we've already cut his dose by one third. Now we just have to cross our fingers that what he's taking now is enough to prevent an episode of flutter before the 24th! Also, he needs to stop the coumadin about 10 days before any invasive procedures so that means today or tomorrow will be his last dose of that. I think Colleen is checking with Dr. Bromberg to see if he just wants to have us send in a pacemaker tracing today and if it shows no high rates just stop the coumadin now.
I am really going back and forth between feeling like I'm dying to get up there and get this part of the process over with, and wishing we could put it off another six years or so. I just don't know how I'm going to deal with those eyes looking at me with that "how could you do this to me" look. It's not like we can tell him it's for his own good and reason with him. It's not like we can say, "but you'll be able to go up the stairs again and play and have more energy." I am starting to think he prefers being carried around and spoon-fed anyway!
He had speech today and did great. He's getting a little fiesty when it comes to only wanting to play with what he wants to play with. He was loving these cards that Ms. Chris brought but when she wanted to play with something else to work on a different skill, he balked and fussed until she gave in and let him play with the cards. He's even got her wrapped around his little finger now! Oh well. She agrees that we can push him after he's feeling better. Stinker.