tag:blogger.com,1999:blog-835475674496491234.post3914964301526318911..comments2021-02-18T13:19:00.985-06:00Comments on Care4Conway: Cute Note about Connie's Communication SkillsUnknownnoreply@blogger.comBlogger1125tag:blogger.com,1999:blog-835475674496491234.post-46454358739318371572009-01-16T19:52:00.000-06:002009-01-16T19:52:00.000-06:00Hello, I found your blog page through April Giesma...Hello, I found your blog page through April Giesmann whom I have been chatting with about my heart baby. I am encouraged to see how well Conway is growing, especially with the removal of his NG tube! How great is that. From what I have been reading our sons have similar anatomy but are having different surgeries.<BR/><BR/>Our son, Matthew, was born on 12/18/06 with Single left ventricle, corrected TGA where his ventricles are switched, double inlet valves, Pulmonary Atresia, and VSD. He has had the BT shunt at 4 days, NG tube at 2 months, Glenn shunt at 4 months, G tube at 10 months and Pacemaker at 11 months. We are now in a holding pattern for his Fontan in 2010. His pacemaker was just far enough away that the GI doc could do the g-tube, but he would of preferred it in a different location.<BR/><BR/>Did your son just start eating on his own after some time? I have noticed that our boy is eating a little more, but not nearly enough to sustain. <BR/><BR/>We also go through first steps for speech and we have noticed that he began to talk more after we removed his NG tube. He still will only say some one or two word sentences and many signs that he has learned. <BR/><BR/>Anyhow, I wanted to say "hi" and to introduce myself We live in KC and have everything done at Children's Mercy Hospital in downtown KC. <BR/><BR/>We pray that everything goes well with your family and with Conway. If you are interested we have a carepage at carepages.com, carepage name "matthewzak".<BR/><BR/>Take care<BR/>Kevin RingoKevinhttps://www.blogger.com/profile/03678640464865676632noreply@blogger.com