tag:blogger.com,1999:blog-835475674496491234.post2838433912890332007..comments2021-02-18T13:19:00.985-06:00Comments on Care4Conway: Details on Heart Transplants FYIUnknownnoreply@blogger.comBlogger4125tag:blogger.com,1999:blog-835475674496491234.post-35450596650832540312009-07-30T00:50:48.415-05:002009-07-30T00:50:48.415-05:00Erin, I'm so sorry that you're getting thi...Erin, I'm so sorry that you're getting this news, and hope that Dr. Bove will have a different take. For what it is worth, with enzo's post-DS aortic insufficiency, Dr. Hanley and our PC have always so far said that there were surgical options - it may be worth a paper consultation out here if you don't get the answer you want in Michigan. You're an amazing mom to be dealing with this,<br /><br />Ellen (Yahoo L-TGA)ellen mcdonaldnoreply@blogger.comtag:blogger.com,1999:blog-835475674496491234.post-91451491688557099232009-07-30T00:45:57.464-05:002009-07-30T00:45:57.464-05:00Erin,
Since I talked with you today, I have though...Erin,<br />Since I talked with you today, I have thought about Conway all day. I am really eager to hear Dr. Bove;s input. I mean, really, why can't they just work on the valves? That is just one person's opinion...and he is head of transplant...so to me, he is going to think transplant. I am hoping and praying that Dr. Bove feels that he can operate on the valves. <br />You know I am here for you day or night.<br /><br />Take care and remember....Breathe.<br /><br />YvonneYvonne Mallonhttps://www.blogger.com/profile/17620748238699245939noreply@blogger.comtag:blogger.com,1999:blog-835475674496491234.post-55820792664169747342009-07-29T23:42:15.305-05:002009-07-29T23:42:15.305-05:00Erin,
Yeah, they make it sound so simple. Like, w...Erin,<br />Yeah, they make it sound so simple. Like, wow. Why didn't I think of that?!?! <br /><br />I'm sorry that you have to entertain the thought (and that you are up right now Googling information about transplantation!). <br />Adding my prayers that God will grant you the strength you need for such a time as this. <br /><br />Take care~Anonymoushttps://www.blogger.com/profile/04314802219642337134noreply@blogger.comtag:blogger.com,1999:blog-835475674496491234.post-22864547970261279202009-07-29T22:33:21.939-05:002009-07-29T22:33:21.939-05:00Erin
I totally agree!!! People ask us the same q...Erin<br /><br />I totally agree!!! People ask us the same question all of the time. I tell them, "well if the heart transplant is rejected then the game is over". No, second chances usually. So, ya we all want to keep our little kiddos damaged hearts as long as we can. It's so hard for everyone to understand. I can only imagine what you are going through right now. We are praying and thinking of you and Connie everyday. Connie is a lucky little man. Keep up the great work.<br /><br />Heart Hugs, <br />Nicole Hoagland mom of Lorelei HLHSAnonymoushttps://www.blogger.com/profile/02116774460922684782noreply@blogger.com